Yuba City will host the Step Forward to Cure TSC event May 16 at Didar Bains Park. The annual fundraiser supports research and programs for those affected by tuberous sclerosis complex, a rare genetic disorder impacting thousands nationwide. Courtesy photo

YUBA CITY, CA (MPG) - Local families and advocates will gather May 16 at Didar Bains Park for the Step Forward to Cure TSC event, a fundraiser and awareness campaign supporting those affected by tuberous sclerosis complex.

The event will run from 10 a.m. to 3 p.m. and is open to the public. Organizers said participants can register online or sign up on site the day of the event.

Step Forward to Cure TSC is part of a nationwide effort now in its 25th season. This year, 14 events will take place across the country between April 11 and June 8, along with a virtual option for those unable to attend in person.

Tuberous sclerosis complex, or TSC, is a rare genetic disorder that can cause tumors to form in multiple organs, including the brain, heart, lungs, kidneys, skin and eyes. The condition affects about 50,000 people in the United States and roughly 1 million worldwide.

Symptoms and severity vary. Some individuals live independently with mild effects, while others require lifelong care due to complications such as seizures, autism and other neurological conditions. TSC is also considered the leading genetic cause of epilepsy, with an estimated 40% to 50% of those affected also diagnosed with autism spectrum disorder.

Organizers said the event provides an opportunity for families to connect while raising funds for research, education and support programs. The walk coincides with Tuberous Sclerosis Awareness Month in May and Global Awareness Day on May 15.

Last year, the national campaign raised nearly $800,000. Since its inception, the effort has generated more than $24 million to support research and advocacy.

Funds raised through the campaign also contribute to broader medical research, including studies related to epilepsy, autism, cancer and other conditions.

More information and registration details are available at stepforwardtocuretsc.org.